Never
be
mine
this
christmas
time
Never
be
mine
this
christmas
time
Never
be
mine
this
christmas
time
Never
be
mine
this
christmas
time
Never
be
mine
this
christmas
time
EDS’s most common symptom is excessive flexibility, yet this symptom is often idealised as a ‘superpower’, severely delaying diagnosis. The average time it takes for the correct diagnosis is 12 years. Time to be less flexible. If you suspect you have EDS, speak to your GP and request a referral to a geneticist or rheumatologist today.
DEMAND A DIAGNOSIS.
EDS’s most common symptom is excessive flexibility, yet this symptom is often idealised as a ‘superpower’, severely delaying diagnosis. The average time it takes for the correct diagnosis is 12 years. Time to be less flexible. If you suspect you have EDS, speak to your GP and request a referral to a geneticist or rheumatologist today.
DEMAND A DIAGNOSIS.
EDS’s most common symptom is excessive flexibility, yet this symptom is often idealised as a ‘superpower’, severely delaying diagnosis. The average time it takes for the correct diagnosis is 12 years. Time to be less flexible. If you suspect you have EDS, speak to your GP and request a referral to a geneticist or rheumatologist today.
DEMAND A DIAGNOSIS.
EDS’s most common symptom is excessive flexibility, yet this symptom is often idealised as a ‘superpower’, severely delaying diagnosis. The average time it takes for the correct diagnosis is 12 years. Time to be less flexible. If you suspect you have EDS, speak to your GP and request a referral to a geneticist or rheumatologist today.
DEMAND A DIAGNOSIS.
EDS’s most common symptom is excessive flexibility, yet this symptom is often idealised as a ‘superpower’, severely delaying diagnosis. The average time it takes for the correct diagnosis is 12 years. Time to be less flexible. If you suspect you have EDS, speak to your GP and request a referral to a geneticist or rheumatologist today.
DEMAND A DIAGNOSIS.
EDS’s most common symptom is excessive flexibility, yet this symptom is often idealised as a ‘superpower’, severely delaying diagnosis. The average time it takes for the correct diagnosis is 12 years. Time to be less flexible. If you suspect you have EDS, speak to your GP and request a referral to a geneticist or rheumatologist today.
DEMAND A DIAGNOSIS.
WHAT IS
WHAT IS
WHAT IS
WHAT IS
WHAT IS
DANLOS?
DANLOS?
DANLOS?
DANLOS?
DANLOS?
EHLERS
EHLERS
EHLERS
EHLERS
EHLERS
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks.
In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of EDS but usually a form of collagen – to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS; individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences.
These are complex syndromes affecting many systems of the body at once. Despite this, EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks.
In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of EDS but usually a form of collagen – to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS; individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences.
These are complex syndromes affecting many systems of the body at once. Despite this, EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks.
In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of EDS but usually a form of collagen – to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS; individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences.
These are complex syndromes affecting many systems of the body at once. Despite this, EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks.
In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of EDS but usually a form of collagen – to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS; individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences.
These are complex syndromes affecting many systems of the body at once. Despite this, EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks.
In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of EDS but usually a form of collagen – to be fragile and stretchy. This stretchiness can sometimes be seen in the skin of someone with EDS; individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences.
These are complex syndromes affecting many systems of the body at once. Despite this, EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.
Be social with TEM-PLE:
WHO
WHO
WHO
WHO
WHO
ARE
ARE
ARE
ARE
ARE
TEM-PLE is a music duo that is both sonically stimulating and emotionally resonant. Their songs tell stories, reveal emotions, and capture moments in time. TEM-PLE believes that music has the power to bring awareness to underrepresented issues and inspire people to think about things differently.
Suzette has a wealth of knowledge and experience when it comes to production and songwriting. She brings a idiosyncratic, quirky way of looking at things to the duo and is often responsible for the textural quality of tracks due in part to her unique manipulation and use of sounds. Her strong creative force and unlimited imagination will challenge TEM-PLE audiences to expect the unexpected when entering their musical world!
Aurora is one half of the driving force behind TEM-PLE's music. She is a gifted songwriter and musician who is passionate about using her music to express emotion. Aurora has Ehlers-Danlos Syndrome, a condition that causes chronic pain and fatigue. Using skills learned in college, she turned to virtual instruments and subsequently sound design, composition and production which has been both liberating and career defining. Exploring this path required a new approach to music resulting in a freedom to experiment and complete liberation when manipulating sound.
TEM-PLE is a music duo that is both sonically stimulating and emotionally resonant. Their songs tell stories, reveal emotions, and capture moments in time. TEM-PLE believes that music has the power to bring awareness to underrepresented issues and inspire people to think about things differently.
Suzette has a wealth of knowledge and experience when it comes to production and songwriting. She brings a idiosyncratic, quirky way of looking at things to the duo and is often responsible for the textural quality of tracks due in part to her unique manipulation and use of sounds. Her strong creative force and unlimited imagination will challenge TEM-PLE audiences to expect the unexpected when entering their musical world!
Aurora is one half of the driving force behind TEM-PLE's music. She is a gifted songwriter and musician who is passionate about using her music to express emotion. Aurora has Ehlers-Danlos Syndrome, a condition that causes chronic pain and fatigue. Using skills learned in college, she turned to virtual instruments and subsequently sound design, composition and production which has been both liberating and career defining. Exploring this path required a new approach to music resulting in a freedom to experiment and complete liberation when manipulating sound.
TEM-PLE is a music duo that is both sonically stimulating and emotionally resonant. Their songs tell stories, reveal emotions, and capture moments in time. TEM-PLE believes that music has the power to bring awareness to underrepresented issues and inspire people to think about things differently.
Suzette has a wealth of knowledge and experience when it comes to production and songwriting. She brings a idiosyncratic, quirky way of looking at things to the duo and is often responsible for the textural quality of tracks due in part to her unique manipulation and use of sounds. Her strong creative force and unlimited imagination will challenge TEM-PLE audiences to expect the unexpected when entering their musical world!
Aurora is one half of the driving force behind TEM-PLE's music. She is a gifted songwriter and musician who is passionate about using her music to express emotion. Aurora has Ehlers-Danlos Syndrome, a condition that causes chronic pain and fatigue. Using skills learned in college, she turned to virtual instruments and subsequently sound design, composition and production which has been both liberating and career defining. Exploring this path required a new approach to music resulting in a freedom to experiment and complete liberation when manipulating sound.
TEM-PLE is a music duo that is both sonically stimulating and emotionally resonant. Their songs tell stories, reveal emotions, and capture moments in time. TEM-PLE believes that music has the power to bring awareness to underrepresented issues and inspire people to think about things differently.
Suzette has a wealth of knowledge and experience when it comes to production and songwriting. She brings a idiosyncratic, quirky way of looking at things to the duo and is often responsible for the textural quality of tracks due in part to her unique manipulation and use of sounds. Her strong creative force and unlimited imagination will challenge TEM-PLE audiences to expect the unexpected when entering their musical world!
Aurora is one half of the driving force behind TEM-PLE's music. She is a gifted songwriter and musician who is passionate about using her music to express emotion. Aurora has Ehlers-Danlos Syndrome, a condition that causes chronic pain and fatigue. Using skills learned in college, she turned to virtual instruments and subsequently sound design, composition and production which has been both liberating and career defining. Exploring this path required a new approach to music resulting in a freedom to experiment and complete liberation when manipulating sound.
TEM-PLE is a music duo that is both sonically stimulating and emotionally resonant. Their songs tell stories, reveal emotions, and capture moments in time. TEM-PLE believes that music has the power to bring awareness to underrepresented issues and inspire people to think about things differently.
Suzette has a wealth of knowledge and experience when it comes to production and songwriting. She brings a idiosyncratic, quirky way of looking at things to the duo and is often responsible for the textural quality of tracks due in part to her unique manipulation and use of sounds. Her strong creative force and unlimited imagination will challenge TEM-PLE audiences to expect the unexpected when entering their musical world!
Aurora is one half of the driving force behind TEM-PLE's music. She is a gifted songwriter and musician who is passionate about using her music to express emotion. Aurora has Ehlers-Danlos Syndrome, a condition that causes chronic pain and fatigue. Using skills learned in college, she turned to virtual instruments and subsequently sound design, composition and production which has been both liberating and career defining. Exploring this path required a new approach to music resulting in a freedom to experiment and complete liberation when manipulating sound.
TEM-PLE?
TEM-PLE?
TEM-PLE?
TEM-PLE?
TEM-PLE?
MAKE A
MAKE A
MAKE A
MAKE A
MAKE A
Donations play a pivotal role in enabling EDS Support UK and EDS Society to continue their mission of enhancing the quality of life for those impacted by these complex and often misunderstood disorders.
Join TEM-PLE in Piccadilly Circus, London, 29/11/23 at 6.30pm to watch the first screening of our video on the iconic Piccadilly Screens; accompanied by a live performance of the track by Janayah and the incredible Keynotes Gospel Choir.
Please support us on the evening and help raise awareness for a condition that frequently flies under the radar despite affecting the lives of so many people. As many as 1 in every 5000 people suffer with Ehlers-Danlos Syndrome, however, this number could be significantly higher as diagnosis takes on average 10 - 12 years and the condition is often overlooked or simply misdiagnosed.
We need you to help us make a difference.
Donations play a pivotal role in enabling EDS Support UK and EDS Society to continue their mission of enhancing the quality of life for those impacted by these complex and often misunderstood disorders.
Join TEM-PLE in Piccadilly Circus, London, 29/11/23 at 6.30pm to watch the first screening of our video on the iconic Piccadilly Screens; accompanied by a live performance of the track by Janayah and the incredible Keynotes Gospel Choir.
Please support us on the evening and help raise awareness for a condition that frequently flies under the radar despite affecting the lives of so many people. As many as 1 in every 5000 people suffer with Ehlers-Danlos Syndrome, however, this number could be significantly higher as diagnosis takes on average 10 - 12 years and the condition is often overlooked or simply misdiagnosed.
We need you to help us make a difference.
Donations play a pivotal role in enabling EDS Support UK and EDS Society to continue their mission of enhancing the quality of life for those impacted by these complex and often misunderstood disorders.
Join TEM-PLE in Piccadilly Circus, London, 29/11/23 at 6.30pm to watch the first screening of our video on the iconic Piccadilly Screens; accompanied by a live performance of the track by Janayah and the incredible Keynotes Gospel Choir.
Please support us on the evening and help raise awareness for a condition that frequently flies under the radar despite affecting the lives of so many people. As many as 1 in every 5000 people suffer with Ehlers-Danlos Syndrome, however, this number could be significantly higher as diagnosis takes on average 10 - 12 years and the condition is often overlooked or simply misdiagnosed.
We need you to help us make a difference.
Donations play a pivotal role in enabling EDS Support UK and EDS Society to continue their mission of enhancing the quality of life for those impacted by these complex and often misunderstood disorders.
Join TEM-PLE in Piccadilly Circus, London, 29/11/23 at 6.30pm to watch the first screening of our video on the iconic Piccadilly Screens; accompanied by a live performance of the track by Janayah and the incredible Keynotes Gospel Choir.
Please support us on the evening and help raise awareness for a condition that frequently flies under the radar despite affecting the lives of so many people. As many as 1 in every 5000 people suffer with Ehlers-Danlos Syndrome, however, this number could be significantly higher as diagnosis takes on average 10 - 12 years and the condition is often overlooked or simply misdiagnosed.
We need you to help us make a difference.
Donations play a pivotal role in enabling EDS Support UK and EDS Society to continue their mission of enhancing the quality of life for those impacted by these complex and often misunderstood disorders.
Join TEM-PLE in Piccadilly Circus, London, 29/11/23 at 6.30pm to watch the first screening of our video on the iconic Piccadilly Screens; accompanied by a live performance of the track by Janayah and the incredible Keynotes Gospel Choir.
Please support us on the evening and help raise awareness for a condition that frequently flies under the radar despite affecting the lives of so many people. As many as 1 in every 5000 people suffer with Ehlers-Danlos Syndrome, however, this number could be significantly higher as diagnosis takes on average 10 - 12 years and the condition is often overlooked or simply misdiagnosed.
We need you to help us make a difference.
DIFFERENCE
DIFFERENCE
DIFFERENCE
DIFFERENCE
DIFFERENCE
on all streaming platforms and Vinyl
29th November
on all streaming platforms and Vinyl
29th November
on all streaming platforms and Vinyl
29th November
on all streaming platforms and Vinyl
29th November
on all streaming platforms and Vinyl
29th November
New single Available
New single Available
New single Available
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge. We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge.
We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge.
We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge.
We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge.
We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
on all streaming platforms and Vinyl
29th November
New single Available
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge.
We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
on all streaming platforms and Vinyl
29th November
New single Available
Our story begins and ends with change. We set out to make a difference, to tailor alterations in the fabric of society in a bid to help others. Illness is isolating and easier to tackle once it has a name. Our aim to shine a spotlight on EDS and catapult it out of the shadows leads all those living with this condition out of darkness and to find their voices. Pressure naturally forges change and metamorphosis; embracing it is the challenge.
We have evolved into stronger, more confident people as a result of this adventure, and to everyone that’s made this journey possible and supported us along the way, we want to say Thank You.
We began as two but ended as many, a momentary family bound together by a common goal.
TEM-PLE
